Artist, Designer

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Joined 1 year ago
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Cake day: July 24th, 2023

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  • Oof I’ve had an experience with these meds…

    I used to take Humira for 5 years but my country stopped delivering it (I used to live in Venezuela), then I moved ti the US and started Humira again, but it was about 30-50% effective only, I still had a lot of pain

    I then went through Cosentyx and Taltz, none worked. Then I tried Enbrel, same effectiveness, got it through a foundation. Healthcare didn’t want to cover it and the foundation didn’t approve me if I had Healthcare.

    Got sick in the US, lost all my money (due to lack of money), so I spent the little I had saved to return to my country, moved to Brazil and I’m about to start Golimumab (Simponi) tomorrow, hopefully it works because I haven’t gotten medication in 2 months and the pain feels unbearable.

    Having said all this, if there is a speck of a chance that this helps people with AS and other similar conditions, it would make me happy. Having this kind of pain is unbearable.

    Sorry for the long comment, I suddenly wanted to rant about this!


  • Hope it’s not a stupid question but would this kind of thing work for ankylosing spondylitis??

    I ask because I suffer from AS the doctor’s that I’ve gone to are always arguing whether it’s an autoimmune or an autoinflammatory disease, and on the web it says that the underlying mechanism is either of the two as well.

    So it’s not clear to me whether it’s one or the other, or if itimplies the same thing. I’ve read a huge deal about AS but I’m not really good at biology or medicine to understand a lot.

    Honestly the only reason I’m commenting -and asking- here, is because I want to have hope that this actually leads up to something that can help me stop this fucking pain that makes me feel like I want to die (figuratively) but I’m afraid of this being a clickbait article.

    Also my English is not the best so sorry for any mistakes and for the long comment.


  • redimk@lemmy.dbzer0.comtoFediverse@lemmy.world*Permanently Deleted*
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    1 year ago

    Isn’t this ok? I’m not saying it’s better… just OK?

    I don’t know if this is just me but why is there always a race to be the “most popular/larger platform”?

    Isn’t this kind of race to be the most popular the reason why a lot of platforms/companies/jobs/games/etc are suffering today? Growth for the sake of growth and forcing something to be more popular just because it needs to be more popular is just kind of sad.

    It’s not like “corporate fediverse/lemmy” needs more users… At least this is my opinion.



  • That may be true, but I think he might have a case…

    The lawsuit said that Ackerman sent a pre-publication copy of the book to the Tetris Company earlier that year. He said the company refused to license its intellectual property for projects related to his book, dissuading producers who were interested in adapting it, and sent him a “strongly worded cease and desist letter.”

    So he made the book, presented it to Tetris, they rejected the idea, threatened him to sue if he did his own thing, rejected other producers, then I guess partnered with Apple and made it as if it was their idea.

    Are there fictional elements or speculations in Ackerman’s book that were translated to the Apple movie?

    I think so, I think it’s more a thematic kind of thing, not the history per se. But I haven’t watched the movie or read the book, so this is just my point if view from what the article says.

    No idea if it works like that or if he would have a case as I’m not a lawyer, or writer, or producer, so take what I said with a pinch of salt.